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Port Revision
Christina just rolled back to the OR. Her port catheter had moved. They will do a dice study and see how the catheter is routed. Then they will remove the port and the catheter and do a replacement. While in the OR and under sedation she will also have the Nexplanon removed. It was a…
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Hurting A Lot Today
Today I went to camp and staff had to call dad. I was hurting A LOT. Dad came and gave me some pain meds and diazepam. Then when we got home, I got a little massage. I had fun at first. I really like going to camp. I have been hurting more. And I also…
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Moving From Caring Bridge
Hi. Caring Bridge made some changes and dad can no longer get to the site without doing some tricky stuff with the internet access. Basically, Spectrum (our ISP) must be blocking caringbridge.org. He can get to the site by using the mobile data on his phone. Or, turning off the wifi and connecting via a…
