Category: Uncategorized
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G-Tube Change
Dad changed my g-tube the other day. It does not take us very long. I get my g-tube changed every other month. Dad usually doesn’t remember on the 1st. I told him I want to go to the doctor to have it changed. He was very surprised. Dad did say that we can go next…
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Port Revision
Christina just rolled back to the OR. Her port catheter had moved. They will do a dice study and see how the catheter is routed. Then they will remove the port and the catheter and do a replacement. While in the OR and under sedation she will also have the Nexplanon removed. It was a…
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Hurting A Lot Today
Today I went to camp and staff had to call dad. I was hurting A LOT. Dad came and gave me some pain meds and diazepam. Then when we got home, I got a little massage. I had fun at first. I really like going to camp. I have been hurting more. And I also…
