Tag: PVL

• Lots Going On

  There is a lot going on and I need dad to help me post. Ugh! Here is a pic of me today.

  Dad

  May 21, 2024

  General

  cerebral palsy, christina, cp, CVI, kademan, PVL, spastic quad, wheelchair

• Helping get dressed.

  When it is time to put my socks on, I have them in my lap and hand each one  to dad. Then he puts them on my feet. This morning I had a tough time. My muscles did not want to do what I wanted. And, my hands did not work well either. It was…

  Dad

  March 28, 2024

  Activities

  cerebral palsy, christina, cp, CVI, derek, kademan, Occupational Therapy, Physical Therapy, PVL, spastic quad, wheelchair

• Port-A-Cath

  In February I got a port-a-cath put in. Dad tells the nurses that “I’m a hard stick”. And, a few months ago during one of my OR appointments the anesthesiologist came to PACU to ask dad if he considered a port. That started the questions and the decision for me to get one. Yesterday, Monday,…

  Dad

  March 20, 2024

  Medical

  cerebral palsy, christina, cp, CVI, derek, heparin flush, kademan, port, port flush, port-a-cath, PVL, spastic quad, wheelchair